Latest From Epidermolysis Bullosa News

Epidermolysis Bullosa News is a digital platform intended to provide the epidermolysis bullosa (EB) community with the most recent news and information on EB, as well as first-hand community perspectives from our patient and caregiver columnists.

All articles on Epidermolysis Bullosa News are original content produced by in-house writers and editors. Occasionally, we seek the opinion of outside experts for interviews and Q&As.

The publishing team at Epidermolysis Bullosa News is made up of science writers and editors, most of whom have PhDs in the life sciences; veteran journalists; and columnists who are members of the EB community. Together, they ensure that all content published on Epidermolysis Bullosa News is relevant, accurate, informative, relatable, and easy to understand.

Our daily reporting includes:

• news stories detailing the latest research and information on EB
• columns by members of the EB community
• feature stories and community profiles
• in-depth reports
• interviews and Q&As with leading experts
• comprehensive conference coverage
• resource and informational pages

Editorial and fact-checking process

Each piece of content is carefully selected and written with the EB community in mind. Sources for news stories and resource pages include peer-reviewed studies, press releases, announcements, interviews, webinars, and conference sessions, among others. All articles go through a stringent fact-checking and editing process to ensure they are accurate, objective, comprehensive, and well-explained.

Our columns are written by EB patients and caregivers who provide an intimate look at what it’s like to live with the disease. Their stories offer a realistic first-hand account of various aspects of the disease, in addition to providing inspiration and hope to our patient communities. While columns are largely opinion and perspective pieces, each one still goes through a comprehensive editing and fact-checking process to ensure clarity, accuracy, and fairness.